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LAST CHANCE! Registrations for MAA’s Integrating Physiotherapy into Your Care Webinar are closing
Don’t hesitate one more minute! Register here for the Myasthenia Alliance Australia (MAA) Integrating Physiotherapy into Your Care Team with Physiotherapist Rodney Wenceslao. Rodney Wenceslao will share practical insights into applying physiotherapy principles to the management of myasthenia gravis, with a focus on adapting movement and exercise to the fluctuating nature of the condition, allowing…
Don’t forget to register for MAA’s Integrating Physiotherapy into Your Care Team with Physiotherapist Rodney Wenceslao.
Register here for the Myasthenia Alliance Australia (MAA) Integrating Physiotherapy into Your Care Team with Physiotherapist Rodney Wenceslao. Rodney Wenceslao will share practical insights into applying physiotherapy principles to the management of myasthenia gravis, with a focus on adapting movement and exercise to the fluctuating nature of the condition, allowing patients to rebuild trust in…
New targeted therapy for Myasthenia patients listed on the PBS!
Generalised Myasthenia Gravis (gMG) patients can now have access to a new targeted therapy Ultomiris, via the Pharmaceutical Benefits Scheme (PBS), broadening our treatment options.* The MAA shared the important moment when Minister Butler announced that this new treatment has been listed, at the annual Rare Disease Day parliamentary event. Access to new targeted therapies…
Optimal CRE Research Webinar Now Available to View
Good news. The MAA are pleased to share content from the Optimal CRE Research Project November 2025 webinar and also an opportunity to be involved in future research offered through this project. This recorded webinar bought together 110 attendees, including people living with myasthenia gravis, clinicians, researchers, and patient advocates to explore current and emerging…
Myasthenia Alliance Australia (MAA) Supports Rare Disease Day – Saturday 28 February 2026
Did you know 300 million people worldwide are living with a rare disease? Rare Disease Day is a global movement raising awareness and advocating for fair access to diagnosis, treatment, healthcare, and social support for people living with rare diseases. For more information visit the official website: www.rarediseaseday.org
Clinical Trial available in Australia!
The MAA is pleased to share with you that a clinical trial is now open for Australian participation. It will potentially offer an additional treatment pathway for myasthenia gravis patients. Please explore more details via the link provided. If you may be willing to participate, speak to your treating neurologist about progressing to the next…
Reminder: Have You Shared Your Experience of Heat and MG Yet?
Recently we announced an important research collaboration between the Myasthenia Gravis Association of Queensland and Queensland University of Technology. This is a gentle reminder that the survey is still open – and we would love to hear from you. Many people living with myasthenia gravis report that heat and hot weather can significantly worsen symptoms…
The MAA team are headed to Canberra!
Once again, it is time to celebrate with Rare Voices Australia (RVA) as they host a parliamentary event in honour of rare diseases day 2026. It is a privilege to have myasthenia gravis represented at this significant event and we express sincere appreciation to RVA for our inclusion. This meeting allows the MAA to speak…
VALUE-MG Study Update
Thank You to the Myasthenia Gravis Community The VALUE-MG study has officially reached its recruitment target, with 216 people living with myasthenia gravis participating across five hospital sites in Australia. This important research is helping build a clearer picture of how myasthenia gravis affects people’s health, daily activities and work over time, and how these…