Last updated: 25 August 2026
1. Introduction
Myasthenia Alliance Australia (MAA) respects your privacy and is committed to protecting your personal information.
This Privacy Policy explains how we collect, use, store and disclose personal information when you interact with our website, programs, events and services.
MAA handles personal information in accordance with applicable Australian privacy laws, including the Privacy Act 1988 (Cth) and the Australian Privacy Principles (APPs) where they apply.
2. Information We Collect
We may collect personal information including:
- Your name, email address, phone number and mailing address
- Organisation, professional or affiliation details
- Information you provide through forms, surveys, donations, event registrations or enquiries
- Information you provide when participating in MAA programs, activities or campaigns
- Technical information such as your IP address, browser type and website usage data
As an organisation supporting people affected by myasthenia gravis, there may be circumstances where you voluntarily provide us with health information or other sensitive information, for example when sharing your MG story, participating in a survey, registering for an event or contacting MAA for information or support.
Where required, MAA will seek your consent before collecting, using or disclosing sensitive information and will only use that information for the purpose for which it was provided or as otherwise permitted by law.
3. How We Collect Information
We may collect personal information when you:
- Contact us by email, phone or through our website
- Subscribe to newsletters or mailing lists
- Register for events or participate in surveys
- Make donations through our website or third-party platforms
- Participate in MAA programs, campaigns or activities
- Voluntarily provide information or share your experiences with MAA
- Use our website, including through cookies and analytics technologies
4. How We Use Your Information
We may use your personal information to:
- Communicate with you and respond to enquiries
- Provide information, resources and services
- Process donations and issue receipts
- Administer events, programs, surveys and activities
- Send newsletters and other communications you have requested or consented to receive
- Improve our website, resources, programs and services
- Undertake research, advocacy or awareness activities where appropriate and in accordance with applicable privacy requirements
- Comply with legal and regulatory obligations
MAA does not sell or rent your personal information.
5. Disclosure of Your Information
We may disclose personal information to:
- Trusted service providers that assist us with our website, communications, events, payments, technology or administration
- Partner organisations where you have consented to the disclosure or where it is otherwise permitted by law
- Professional advisers where necessary
- Government agencies, regulators or other authorities where required or authorised by law
MAA takes reasonable steps to ensure that personal information disclosed to third-party service providers is handled appropriately and only for relevant purposes.
Some third-party and cloud-based service providers used by MAA may store or process information outside Australia. Where applicable, MAA will take reasonable steps to ensure personal information is handled in accordance with applicable Australian privacy requirements.
6. Storage and Security
MAA takes reasonable steps to protect personal information from misuse, interference, loss, unauthorised access, modification and disclosure.
Personal information may be stored electronically or in other secure systems used by MAA and its service providers.
We retain personal information only for as long as reasonably necessary for the purposes for which it was collected or as required by law.
7. Access and Correction
You may request access to personal information MAA holds about you or ask us to correct information that you believe is inaccurate, incomplete or out of date.
To make a request, please contact us at support@myastheniaalliance.org.au.
In some circumstances, Australian privacy law may permit us to refuse access or correction. If this occurs, we will explain the reason where required.
8. Cookies and Analytics
Our website may use cookies and similar technologies to improve website functionality, understand how visitors use our website and analyse website traffic.
You can disable or manage cookies through your browser settings. However, some website features may not function correctly if cookies are disabled.
Third-party analytics and technology providers may also collect information in accordance with their own privacy policies.
9. Third-Party Links
Our website may contain links to websites operated by third parties.
MAA is not responsible for the content, security or privacy practices of external websites. We encourage you to review the privacy policies of third-party websites before providing personal information.
10. Privacy Concerns and Complaints
If you have a question or concern about how MAA has handled your personal information, please contact us using the details below.
We will take reasonable steps to investigate and respond to privacy concerns or complaints.
If you are not satisfied with our response, you may have the right to contact the Office of the Australian Information Commissioner (OAIC) for further information or assistance.
11. Changes to This Policy
MAA may update this Privacy Policy from time to time to reflect changes to our practices, services or legal obligations.
The current version will be published on our website and will show the date it was last updated.
12. Contact Us
If you have questions or concerns about this Privacy Policy, our privacy practices or the way MAA handles your personal information, please contact:
Myasthenia Alliance Australia
Email: support@myastheniaalliance.org.au
Website: myastheniaalliance.org.au