14 Jul
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MESTINON SHORTAGE
Category: Other News
The supply of the 60 mg dose of Mestinon is expected to be disrupted until late August.
01 Jul
MAA_NeedsYou
WORK WITH A GREAT TEAM
Category: Uncategorized
Work with a Great Team!
01 Jun
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June is Myasthenia Gravis Awareness Month!
Category: Uncategorized
June is Myasthenia Gravis Awareness Month.
17 May
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UPDATE to Discussion Paper Regarding COVID VACCINATION
Category: Uncategorized
An update to the COVID-19 Discussion Paper
29 Apr
MAA_Careforia Post Image
Keeping track of your life when managing Myasthenia
Category: Other News
Association Management committee members regularly suggest that people keep a diary of their symptoms, medications, lifestyle impacts etc. in preparation for their visits to the...
17 Apr
MAA_MW_Survey
Consumer Research Survey – IVIg
Category: Research
NPS MedicineWise is looking for people who have been prescribed immunoglobulins (antibodies) as part of their treatment to take part in a short survey online and/or an in-depth ...
18 Mar
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Discussion Paper Regarding COVID VACCINATION
Category: Uncategorized
The consensus of the Doctors is that ALL patients with Myasthenia should be vaccinated.
28 Feb
MAAFebNewsAdvocacyToolkit
ADVOCACY TOOLKIT
Category: Uncategorized
With the support of Terumo BCT, a tailored public affairs toolkit has been developed entitled “How can patient organisations ensure their voices are heard in public policy?” The...
28 Feb
MAAFebNewsNDISGraphic
NDIS SECOND STAGE
Category: Uncategorized
In the latest partner event with Rare Voices Australia, the MAA has participated in a forum to discuss how the NDIS is functioning for people with rare disease.
29 Jan
procedure plasmapheresis - the procedure of purification of blood and plasma from toxins
MAA SEEKING VICTORIANS RECEIVING THERAPEUTIC PLASMA EXCHANGE
Category: Uncategorized
The Myasthenia Alliance Board are seeking out Victorians who access Therapeutic Plasma Exchange as a regular or intermittent treatment option to help them better understand pati...