Patient Tool Kit

This Tool Kit empowers people living with Myasthenia Gravis by bringing essential tools and resources together in one place. From treatment guidance to key questions to ask your specialist, it’s here to help you stay informed, prepared, and confident in managing your MG.

Living with MG can be challenging, but you don’t have to navigate it alone. These resources are here to help you better understand your condition, prepare for appointments, and take an active role in your care.

Track Your MG Symptoms With Confidence

Track your MG symptoms, monitor changes over time and create reports to support more informed conversations with your healthcare team.

Developed with input from people living with myasthenia gravis, the MG Connect App makes it simple to record your weekly MG-ADL scores, identify symptom trends and prepare for appointments with your neurologist.

✔ Weekly symptom tracking

✔ Personal reminders

✔ Trend graphs

✔ Downloadable PDF reports

✔ Works offline

Looking for the Printable MG-ADL Trackers?

Already familiar with the MG-ADL scoring system? Quickly download the printable resources you need below.

Why use MG Connect?

The Myasthenia Gravis Activities of Daily Living (MG-ADL) Tracker is the most commonly used tool to measure and monitor gMG symptoms over time.  It measures 8 common signs and symptoms that relate to daily life.  Answering the questions based on the impact gMG has had on your quality of life over time, compiling your scores and tracking your totals can give you a visual picture that can be useful to share with your healthcare team.

Whilst the MG-ADL Tool is comprehensive, everyone’s experience can differ, so we also encourage you to use the notes section to personalise your symptom monitoring and track what matters most to you.

Track Your
Symptoms

Record how MG affects your daily life using the recognised MG-ADL assessment.

Spot
Patterns

View your symptom trends over time so you can better understand changes in your condition.

Share With Your Neurologist

Generate a PDF report to support more informed discussions during appointments.

Download in two simple ways

We have two resources to help you monitor and measure – a mobile application that you can download to your phone or a paper-based system you can download and print out below.

Option 1: Download from your phone’s app store

If you have an Apple iPhone:

  • Open the App Store
  • Search for MG Connect
  • Tap Download or the cloud icon
  • Open the app once it has finished downloading

If you have an Android or other mobile phone:

  • Open the Google Play Store
  • Search for MG Connect
  • Tap Install

Open the app once it has finished downloading

Option 2: Use the QR code

You can also use the QR code shown here

  • Open your phone’s camera
  • Point it at the QR code
  • Tap the link that appears on your screen
  • This will take you directly to the correct app download page
  • Follow the steps on your phone to install the app

Need a little extra help?

If you're new to the MG Connect App or would like step-by-step instructions, the User Guide will walk you through downloading the app, setting up your account and making the most of its features. View the MG Connect User Guide

Prefer Pen and Paper?

Track your symptoms on paper.

If you'd rather not use a mobile app, you can still monitor your symptoms using our printable MG-ADL Symptom Tracker. Simply download the guide below, record your weekly scores by hand, and bring it along to your appointments to help support conversations with your healthcare team.

1. MG-ADL Symptoms - is your reference for the scoring. It does not necessarily need to be printed out.

MAA-MGADLFINAL_Page_1

2. Score Sheet - is where you add up your scores.

 

MAA-MGADLFINAL_Page_3

3. Tracker Graph - is where you mark your total scores over time.

 

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Medications and MG – Drugs To Use With Caution

Understanding Drug Sensitivities in Myasthenia Gravis

Some medications can worsen MG symptoms or trigger a myasthenic crisis. It's crucial that healthcare providers are aware of these risks to ensure safe and effective treatment plans. The following resources offer guidance on drugs that should be used with caution or avoided entirely for patients living with MG.

Below you’ll find a detailed table outlining high-risk medications, common interactions, and clinical recommendations to support informed decision-making in MG care.

⚠️ Important Information for Prescribers and Patients

The following table includes a partial list of medications that may worsen Myasthenia Gravis (MG) symptoms. It is intended as a guide to support informed treatment decisions between patients and their healthcare providers.

Please note:

  • Individual responses vary. The medications listed can be used in MG patients when clinically appropriate and with careful monitoring.

  • Presence on this list does not mean a drug is strictly contraindicated.

  • Absence from this list does not guarantee a drug is safe. Always consult a specialist familiar with MG when prescribing new medications.

drugs_mg2

Additional Resources

For a more detailed list and professional guidance, visit the MGFA’s Resources for Professionals page.

📄 Prefer a printable version?
Download the MAA Trifold: Drugs That May Worsen MG Symptoms (PDF)
This easy-reference guide is designed for both patients and healthcare providers.

Know Your Type of MG

Do You Know What Type of Myasthenia You Have?

Understanding your MG subtype helps guide treatment decisions and ensures you receive the care that’s right for you. Use this printable checklist to start a conversation with your neurologist or specialist.

Know your MG

Know Your MG Subtype

Understanding the type of Myasthenia Gravis you have is an important step in managing your condition. Whether it’s AChR positive, MuSK, LRP4, seronegative, ocular-only, generalised MG, or Congenital Myasthenia Syndrome (CMS), your specific subtype may influence which treatments are most effective.

Use this downloadable checklist to confirm your diagnosis and discuss it with your specialist. Staying informed helps you play an active role in your care.

Educational Webinars

Learn More About Managing Myasthenia Gravis

Access educational webinars covering important topics for people living with myasthenia gravis. Hear from healthcare professionals, researchers and experts, and explore information to help you better understand MG, treatment and care.

MG Educational Webinars
Integrating Physiotherapy into Your Care Team webinar by Myasthenia Alliance Australia
Webinar: Integrating Physiotherapy into Your Care Team
Introduction to Myasthenia Gravis webinar recording now available, hosted by OPTIMAL CRE in partnership with Myasthenia Alliance Australia
Optimal CRE Research Webinar Now Available to View
UCA9823_PAP_Web Meeting_LINKEDIN_1200x628px_AW1.1_VF
Nursing Excellence: The Vital Role of nurses in MG care
Expert Insights webinar on Myasthenia Gravis and symptom assessment tools to improve patient outcomes, presented by Dr Carlo Antozzi.
EXPERT INSIGHTS: Myasthenia Gravis and symptom assessment tools to improve outcomes

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Helpful Updates for Living Well with MG

Get practical tips, new resources, and the latest MG updates delivered straight to your inbox. Whether you’re newly diagnosed or managing your condition long-term, our news feed helps you feel informed and in control.

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Accessing IVIg Treatment

Managing Myasthenic Crises: IVIg and Emergency Care

If IVIg is part of your treatment plan, knowing when and how to access it can be lifesaving. This article outlines the importance of timely intervention and what to expect from IVIg treatment. Share it with your GP, hospital team, or carers.

INTRAVENOUS IMMUNOGLOBULIN (IVIG)

Understanding IVIG Treatment for MG

Intravenous immunoglobulin (IVIG) therapy plays a critical role for patients with severe or treatment-resistant myasthenia gravis. While not a long-term solution, IVIG offers rapid symptom relief during periods of intense weakness. This summary explains how IVIG works, who it’s recommended for, and what patients can expect from the treatment - including potential side effects and benefits.

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Be the First to Know About MG Tools & Updates

Join MAA’s mailing list to receive new tools, treatment news, patient stories, and support resources - created for Australians living with Myasthenia Gravis. It’s free, relevant, and designed with you in mind.

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Latest Updates for Living with MG

Explore the newest insights, research highlights, and personal stories to help you better understand and manage Myasthenia Gravis. This feed features relevant articles selected for their value to people living with MG, including updates on treatments, advocacy, and patient-led initiatives.

Scroll down to see what’s new and useful.

The Rare Disease Disability Toolkit webinar with Rare Voices Australia and Fiona Lawton
The Rare Disease Disability Toolkit with Rare Voices Australia
WA MG Community Meet-Up at Dôme Café Mount Pleasant on 24 July 2026
MG Connect Patient Symptom Tracker App helping Australians with myasthenia gravis monitor symptoms.
MyClad Study clinical trial banner inviting Australians with myasthenia gravis to participate in MG research
MyClad Study – ALL Recruitment Sites are now operating and ready for enquiries.
Brain Function and Wellbeing App Survey inviting people living with neurological conditions to help shape a new smartphone app.
Help Shape a New Brain Function and Wellbeing App. Complete a Short Survey by 6 July
Rystiggo (rozanolixizumab) now available on the PBS for eligible Australians living with generalised Myasthenia Gravis.
A new innovative therapy for Myasthenia listed on the PBS