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Supporting MG Awareness with “Art with Heart” 2026!
The Myasthenia Alliance Australia (MAA) is proud to continue its important work during International June MG Awareness Month 2026. We need your help now to find items for our Art with Heart Auction to raise awareness of MG and build resources to support the important work of the MAA. Get Involved and Make an Impact The first step…
Participate in a unique MGAQ research project: Share your experience about how heat affects you
Many people with myasthenia gravis report that heat and hot weather exacerbate their symptoms and impact their daily lives. However, little research has been performed to understand the exposures that trigger worsening symptoms or the broader impacts on daily life for individuals with myasthenia gravis. The Myasthenia Gravis Association of Queensland (MGAQ) is collaborating with…
Something big is coming for our MG community.
Look out for our new research project launching in the new year! The Myasthenia Gravis Association of Queensland is proud to share that we are working with Queensland University of Technology to explore Heat Sensitivity in People with Myasthenia Gravis. With input from leading specialists, including Dr Stefan Blum, we are developing a survey to gather…
Nursing Excellence: The Vital Role of nurses in MG care
Nurses play a central role in supporting people living with myasthenia gravis, providing not only clinical care but also guidance, advocacy, and reassurance at every stage of the journey. In this recent Nursing Excellence webinar, Nurse Practitioner Jenny Stofmeel shared valuable insights into how nurses can support individuals with MG through personalised care, ongoing monitoring,…
Rare Disease Connect in Neurology
Rare Disease Connect in Neurology – connecting with fellow patient organisations in Barcelona Rare Disease Connect in Neurology (RDCN) is an annual meeting that includes both healthcare professionals and patients. I was very honoured to be invited and sponsored by UCB to attend the 5th RDCN in Barcelona on behalf of the MAA and the…
MG Vic Management Committee.
MG Vic Management Committee. Passionate people like you could be the difference between achieving something good or something great for the Victorian MG community. MG Vic will not happen or thrive without Victorians making it happen – Your community is calling you. That’s why we’d love you to consider joining the MG Vic Management Committee…
This is your chance to enhance the lives of Victorians living with MG.
Join the MG Vic Management Committee. This is your chance to enhance the lives of Victorians living with MG. Join our committee, you could help combat myasthenia gravis in Victoria. The management committee and you will help to improve education and connection within the MG Vic community. If you think you’ve got what it takes,…
Last chance to register! Multi-stakeholder webinar on Myasthenia research updates
Last chance to register! Multi-stakeholder webinar on Myasthenia research updates The Myasthenia Alliance Australia is partnering withOPTIMAL NHMRC Centre for Research Excellence in improving immunoglobulin use. There is just 1 week to go until our informative webinar on Myasthenia Gravis! Date: Monday 24th November 2025 Times: Why attend? As a patient, you can learn more about current research and…
MG Vic Management Board
MG Vic Management Board If you have the passion and drive, we’d like you to join the MG Vic Management Board. As a Board member, your voice will help improve the lives of Victorians living with MG. If you’re interested, please tell us about your experience with MG and how you believe you could assist…
We’re excited to introduce MG Vic
We’re excited to introduce MG Vic, Victoria’s association, to support people across the state living with Myasthenia Gravis. MG Vic will amplify the voices of patients, families and carers through awareness and education. We will connect the MG community and beyond, with local events in your area, as well as raising awareness. We are…