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Alexion-gMG-Research
Market research on Generalized Myasthenia Gravis (gMG)

The MAA respectfully requests patient support in further telling the story of their experiences with all forms of Myasthenia. Please note, we are very pleased that this survey can be completed via a hardcopy option. Please call Libby on 0407 110 204 to arrange this. Late last year Alexion asked several people living with MG…

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Final Reminder – Partnering With Canada

To Australians with Myasthenia, the following is a message from Dr Carolina Barnette-Tapia MD, PhD of Canada. The MAA thank Australians for their interest in supporting this project. Responses will be welcomed until early September 2024. Information about the outcomes resulting from this research has been requested. Disclosure information is provided after logging in. “We…

Research-Report
Research Report

The Myasthenia Alliance Australia (MAA) supports and promotes research that is specific to the experience of Myasthenia Gravis (MG) patients in Australia. But we would not be able to do this without the essential and valuable contribution of Australians with MG. One current project is VALUE-Ig, which aims to generate evidence to inform the optimal…

UPDATED – Participate in a focus group to help design research for MG patients

Participate in a focus group to help design research for MG patients

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Couch Consumer Research

Couch Consumer Research

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Industry Engagement Opportunity for AChR+ MG Patients – The MAA appreciates your interest in this market research if you feel you can help.

Industry Engagement Opportunity AChR+ MG Patients

Updated COVID Booster Advice 2023

An update to COVID-19 Booster Vaccination 2023

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Healthed Podcast Interview with Dr Fiona Chan

The 45-minute interview with Neurologist Dr Fiona Chan and Dr David Lim, GP and Medical Educator, covers issues such as the increasing diagnoses of MG, symptoms, how to test for MG, and referral and treatment goals.

MAA Covid-19 Vaccination Announcement

An update to COVID-19 Vaccination

UPDATE to Discussion Paper Regarding COVID VACCINATION

An update to the COVID-19 Discussion Paper