MAA UPDATE 

Registrations for the MAA October 21st 2023 Conference in Sydney are now rising steadily with representation coming from every State and Territory (except NT so far) and also New Zealand. 

The conference will be a coming together of people who are genuinely invested in Myasthenia. Patients, Carers, Health Professionals, Specialists and Industry Representatives have registered and communicated a sincere interest in learning and sharing. A pathway to better health can be achieved when we work together.  

A great deal of thought has gone into making attending as manageable for patients as possible. Examples include the use of a small and easily accessible venue with a limited capacity of 120 attendees. There is also a drop off bay at hand and parking is close by.  Lots of seating both inside and out is available during the breaks and signage will assist people to find others from their home state and a dedicated event manager will be available to assist throughout the day. The volunteers from the MAA, MGAQ and MGNSW are excited to meet with friends, new and old and will make everyone feel welcomed. Wheelchairs and wheelie walkers can be accommodated. (Please note this on the form). Best of all, attendee privacy is a priority – it is a safe space where individual needs will be listened to and understood. 

Whilst not everyone interested in coming along is in a position to attend, it is envisaged that benefits from the day will flow through to our community for many months to follow. Information will be shared as is practical and new initiatives will be open to all for participation. Everyone will benefit at some level.

The MAA, MGAQ and MGNSW teams are dedicated to making this event a truly special encounter and a very forward-thinking day. I thank these volunteers for being so willing to donate tirelessly of their time and energy and for supporting me once again in another bold endeavour to ensure that Myasthenia Voices Do Matter! 

Updated conference information including an extension to the registration deadline can be accessed by the “CLICK HERE” link below. 

Events like these are not possible without the support of our sponsors and sincere appreciation from the MAA is expressed to Alexion, CSLBehring, UCB and Janssen. 

Kindest regards, 

Susan White – MAA Chairperson