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Art With Heart: Turning Awareness into Action for Myasthenia Gravis
Most people have never heard of myasthenia gravis. And for those living with it, that lack of awareness can make everyday life harder than it needs to be. It can mean delays in diagnosis.Limited access to the right care.And a constant need to explain a condition that isn’t always visible to others. For many, the…
Share your experience of neurological care and research in Australia
As an active and focused member of Neurological Alliance Australia (NAA), the MAA is supporting the NAA’s first national survey examining gaps in neurological care, support, research and identifying innovation across Australia. The survey seeks insights from people living with neurological and neuromuscular conditions, carers, clinicians, researchers, service providers, pharma industry and policymakers. Findings will…
Second new targeted therapy listed on the PBS for MG
Zilbrysq has been listed on the PBS for generalised myasthenia gravis in Australia, expanding access to targeted therapies for eligible patients.
Support Art with Heart: We Need Your Help!
WE NEED YOUR HELP The Myasthenia Alliance Australia (MAA) is proud to continue its important work of raising awareness about Myasthenia Gravis during International June MG Awareness Month 2026. We need your help now to find items for our Art with Heart Auction to raise awareness of MG and build resources to support the important…
CLOSING SOON. HAVE YOUR SAY
You can help raise awareness about how heat and hot weather affect people living with myasthenia gravis. If you have been diagnosed with myasthenia gravis and are 18 years or older, we invite you to complete an online survey (20–30 minutes) about your experiences in the heat. Survey link:https://qsurvey.qut.edu.au/jfe/form/SV_6rOcwdvQWzhQOG2 Your participation will help to shed…
LAST CHANCE! Registrations for MAA’s Integrating Physiotherapy into Your Care Webinar are closing
Don’t hesitate one more minute! Register here for the Myasthenia Alliance Australia (MAA) Integrating Physiotherapy into Your Care Team with Physiotherapist Rodney Wenceslao. Rodney Wenceslao will share practical insights into applying physiotherapy principles to the management of myasthenia gravis, with a focus on adapting movement and exercise to the fluctuating nature of the condition, allowing…
Don’t forget to register for MAA’s Integrating Physiotherapy into Your Care Team with Physiotherapist Rodney Wenceslao.
Register here for the Myasthenia Alliance Australia (MAA) Integrating Physiotherapy into Your Care Team with Physiotherapist Rodney Wenceslao. Rodney Wenceslao will share practical insights into applying physiotherapy principles to the management of myasthenia gravis, with a focus on adapting movement and exercise to the fluctuating nature of the condition, allowing patients to rebuild trust in…
New targeted therapy for Myasthenia patients listed on the PBS!
Generalised Myasthenia Gravis (gMG) patients, who are also AChR+ can now have access to a new targeted therapy Ultomiris, via the Pharmaceutical Benefits Scheme (PBS), broadening our treatment options.* The MAA shared the important moment when Minister Butler announced that this new treatment has been listed, at the annual Rare Disease Day parliamentary event. Access…
Optimal CRE Research Webinar Now Available to View
Good news. The MAA are pleased to share content from the Optimal CRE Research Project November 2025 webinar and also an opportunity to be involved in future research offered through this project. This recorded webinar bought together 110 attendees, including people living with myasthenia gravis, clinicians, researchers, and patient advocates to explore current and emerging…