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Success: Four new treatment options recommended for MG patients in Australia!
The Pharmaceutical Benefits Advisory Committee (PBAC) has published the outcomes from their March 2025 meeting. PBAC has recommended that all 4 new treatments for MG patients be listed on the Pharmaceutical Benefits Scheme (PBS). This is wonderful news for our patient community in Australia and it shows that our submissions and engagement with the assessment process were impactful…
Interested in Joining a Consumer Advisory Council?
What’s next? Alexion is responding to the findings of the recently issued Infographic (found below) by establishing a Consumer Advisory Council to guide the development of tools to improve how the healthcare system supports people living with gMG in Australia. SenateSHJ, a health communication and research agency, is supporting Alexion with this work. Would you be interested in…
Social, personal and professional Impacts highlighted in lived experience survey
Late last year, many people in our community participated in a survey conducted by Alexion Pharmaceuticals about the impact of generalised Myasthenia Gravis (gMG) on daily life and experiences with healthcare professionals. The survey found gMG has a significant impact on people’s social, personal and professional life with one in two retiring early. Restricted social life,…
Expanding Treatment Options – January 2025
Living with MG means navigating a complex treatment journey. While we’ve come a long way with effective therapies like steroids, immunosuppressants, IVIG, and surgery, not all patients respond the same way. New treatments aim to fill these gaps, providing more options and hope for people with this challenging condition. Whether you’re newly diagnosed or have…
Rare Diseases Day 2025!
Today is our special day as the world recognises people with a rare disease such as Myasthenia. The MAA share the 2025 logo with you and perhaps you will share this email with others. For the rare disease sector there are challenges to gaining comprehensive and equitable care and to being understood. Celebrating today and…
10 Years celebrating Advocacy, Research, and Unity
The MAA is proudly celebrating ten years with all our keen supporters by sharing a few words from the three founding members who have been an integral part of this wonderful decade of the alliance. Please do view the timeline included here. It reflects the key components of our history. We are sure that you…
Research Report
The Myasthenia Alliance Australia (MAA) supports and promotes research that is specific to the experience of Myasthenia Gravis (MG) patients in Australia. But we would not be able to do this without the essential and valuable contribution of Australians with MG. One current project is VALUE-Ig, which aims to generate evidence to inform the optimal…
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