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Reminder: Join MAA’s Upcoming Webinar on Recognising MG Symptom Changes
Living with myasthenia gravis often means symptoms can change unexpectedly, making it difficult to know when to seek support or start a conversation with your healthcare team. Myasthenia Alliance Australia (MAA) invites you to join our upcoming webinar: Speaking Up When Symptoms Change: Knowing When and How to Reach Out to Your Doctor Presented by…
The Response to Art With Heart Has Been Incredible… But We’re Not Done Yet
The generosity already shown through the Art With Heart campaign has been truly inspiring. With artwork and item donations officially closing on 5 June 2026, now is the final opportunity to contribute to a campaign helping raise awareness and support for people living with myasthenia gravis. Artists, supporters, businesses, and members of the community from…
Speaking Up When Symptoms Change | Knowing When and How to Reach Out to Your Doctor
Registration Link: https://zoom.us/webinar/register/WN_rTzKa6zoTyGttHznwYyNVA
Have your say on the framework for how we engage in HTA
You are invited to take a look at the draft Framework for Consumer Engagement in Heath Technology Assessment (HTA)and share your feedback directly with the government. Over the past couple of years, you – the Australian Myasthenia Gravis patient community – have contributed to the HTA process for new and innovative treatments being made available…
Art With Heart: Turning Awareness into Action for Myasthenia Gravis
Most people have never heard of myasthenia gravis. And for those living with it, that lack of awareness can make everyday life harder than it needs to be. It can mean delays in diagnosis.Limited access to the right care.And a constant need to explain a condition that isn’t always visible to others. For many, the…
Share your experience of neurological care and research in Australia
As an active and focused member of Neurological Alliance Australia (NAA), the MAA is supporting the NAA’s first national survey examining gaps in neurological care, support, research and identifying innovation across Australia. The survey seeks insights from people living with neurological and neuromuscular conditions, carers, clinicians, researchers, service providers, pharma industry and policymakers. Findings will…
Webinar: Integrating Physiotherapy into Your Care Team
Explore key insights from our recent webinar on physiotherapy and myasthenia gravis, including how MG-informed physiotherapy can support movement, build confidence and help people better understand their body’s signals. Watch the webinar and discover practical takeaways for integrating physiotherapy into your care team.
Second new targeted therapy listed on the PBS for MG
The good news keeps coming! Zilbrysq (zilucoplan) has been listed on the Pharmaceutical Benefits Scheme (PBS) for generalised Myasthenia Gravis (gMG) patients who are AChR antibody positive.* Zilbrysq (zilucoplan) is a complement inhibitor, and this means that two complement inhibitors are now more widely and more equitably available for our MG patient community in Australia.…
Support Art with Heart: We Need Your Help!
WE NEED YOUR HELP The Myasthenia Alliance Australia (MAA) is proud to continue its important work of raising awareness about Myasthenia Gravis during International June MG Awareness Month 2026. We need your help now to find items for our Art with Heart Auction to raise awareness of MG and build resources to support the important…
CLOSING SOON. HAVE YOUR SAY
You can help raise awareness about how heat and hot weather affect people living with myasthenia gravis. If you have been diagnosed with myasthenia gravis and are 18 years or older, we invite you to complete an online survey (20–30 minutes) about your experiences in the heat. Survey link:https://qsurvey.qut.edu.au/jfe/form/SV_6rOcwdvQWzhQOG2 Your participation will help to shed…