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Partnering With Canada
To Australians with Myasthenia, the following is a message from Dr Carolina Barnette-Tapia MD, PhD of Canada. The MAA thank Australians for their interest in supporting this project. Responses will be welcomed until early September 2024. Information about the outcomes resulting from this research has been requested. Disclosure information is provided after logging in. “We…
Gene Therapy for Congenital Myasthenia Syndrome – Webinar Invitation
The MAA first engaged with Amplo Biotechnologies at the 2019 Brisbane Conference. We are delighted to report that Patricio Sepulveda, CEO, is offering to share updated information on “what they are doing and where they are at”. Patricio reports that 35 different genes have now been identified to capture more people with Congenital Myasthenia Syndrome.…
Make a submission to PBAC about a new complement inhibitor treatment, Zilucoplan
Make a submission to PBAC about a new complement inhibitor treatment, Zilucoplan
UPDATED – Participate in a focus group to help design research for MG patients
Participate in a focus group to help design research for MG patients
Update – There is still time to make your submission to PBAC
There is still time to make your submission to PBAC
More Responses Needed for Online Survey (for PBAC submission)
More Responses Needed for Online Survey (for PBAC submission)
