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The Rare Disease Disability Toolkit with Rare Voices Australia
Tuesday, 28th July 2026, 12:30-1:30pm AEST 12:30-1:30pm NSW, VIC, QLD, TAS, ACT 12:00-1:00pm SA, NT 10:30-11:30am WA MAA is pleased to invite you to an educational webinar with Fiona Lawton, Disability Advocacy Manager for Rare Voices Australia (RVA), the national peak body for Australians living with a rare disease. In this webinar, Fiona will talk…
WESTERN AUSTRALIA MG COMMUNITY MEET-UP
West Australians living with myasthenia gravis, along with family and supporters, are invited to join us for a relaxed community catch-up in Mount Pleasant. 📅 Friday 24 July 2026⏰ 11.00 am📍 Dôme Café, The Esplanade, Mount Pleasant Annette and Jean will be your hosts for the morning. Come along, meet others and connect with the…
MG Connect Patient Symptom Tracker App now available
Living with myasthenia gravis (MG) can be unpredictable, and symptoms often fluctuate between clinic visits. The MG Connect Symptom Tracker App, developed with input from people living with MG, helps capture day-to-day changes and have more focused conversations with your neurologist. Built around the widely used Activity of Daily Living scale (MG-ADL), the app lets…
MyClad Study – ALL Recruitment Sites are now operating and ready for enquiries.
People living with generalised myasthenia gravis (gMG) who are interested in learning more about clinical research opportunities can now enquire about the MyClad Study, with all recruitment sites and participating hospitals now open for enquiries. The MyClad Study is a clinical research study evaluating an investigational medication taken by mouth for people living with gMG.…
Help Shape a New Brain Function and Wellbeing App. Complete a Short Survey by 6 July
Share your feedback by Monday 6 July Researchers from Monash University and Alfred Health are inviting people living with neurological conditions to help shape the development of a new Brain Function and Wellbeing App. The smartphone app is being designed to help people track symptoms, thinking, memory, wellbeing and quality of life over time. It…
A new innovative therapy for Myasthenia listed on the PBS
Rystiggo (rozanolixizumab) is now listed on the Pharmaceutical Benefits Scheme (PBS) for generalised Myasthenia Gravis (gMG) patients who are AChR antibody positive.* Rystiggo is the first neonatal Fc receptor (FcRn) inhibitor available via the PBS for our patient community. This is a fantastic milestone for us because it expands our treatment options. In fact, it…
Final Opportunity: The Art With Heart Auction Closes This Sunday
VIEW THE ART WITH HEART AUCTION >> The countdown is on… After months of planning, creating, donating, sharing and raising awareness, the Art With Heart Auction is now entering its final days. At midnight on Sunday 28 June 2026, bidding will officially close. If you’ve been meaning to take a look, place a bid, or…
Art With Heart Auction | Bidding Now Open!
VIEW THE ART WITH HEART AUCTION >> What an incredible month it has been for the MG community. Across Australia, MG Awareness Month has sparked a wave of activity, connection and conversation. From partnerships with the Cowboys Rugby League Club and landmark buildings lighting up in support, to guest speakers, community walks and local events,…
A message to the Australian MG community and in particular to patients in NSW from Associate Professor Stephen Reddel.
I am writing to let you know that I, Steve Reddel, is taking part as a Principal Investigator in a study for patients with generalized Myasthenia Gravis (gMG). The study is sponsored by Novartis. The study is a multicentre, double-blind, placebo-controlled phase III study of an oral medication in generalised myasthenia gravis patients with ACHR+…
Save the Date! MAA 5th National Patient Conference
The MAA team are preparing to host a 5th National Patient Conference. This will be a very special event hosted at Rydges South Bank in South Brisbane. Hosting at a function centre allows the MAA to make attending much more achievable for many in our community. Auditorium seating is replaced with round tables, lots of…