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[Updated Link] EXPERT INSIGHTS: Myasthenia Gravis and symptom assessment tools to improve outcomes
The Myasthenia Alliance Australia are delighted to announce an in-person event to be hosted in Brisbane on Monday September 15th from 12 midday. We thank Argenx for supporting this opportunity to hear from Dr Carlo Antozzi speaking on “Myasthenia Gravis and symptom assessment tools to improve outcomes”. This is a significant educational opportunity for patients…
You are not alone in your experiences!
The MAA captured some invaluable information about our community as a part of the webinar hosted in January 2025. The webinar heard from leading Specialists who explained the new treatments which are currently seeking PBS funding. This webinar can be viewed here. The information collected was incorporated into the MAA Submission to the PBAC. The…
Conversations continue for access to new treatments
We appreciate that it has been a couple of months since the Pharmaceutical Benefits Advisory Committee (PBAC) recommended that 4 new treatments for AChR+ generalised MG patients be listed on the Pharmaceutical Benefits Scheme (PBS)… In this time, the MAA has continued conversations with clinicians, government, and industry stakeholders to make sure we understand the progress…
A Decade of Progress and a Clear Vision for the Future
As the Myasthenia Alliance Australia (MAA) marks over ten years of advocacy, research, and awareness, our latest Achievements Poster offers a powerful snapshot of what a committed patient-led movement can accomplish. From grassroots fundraising to national policy impact, MAA’s journey is one of collaboration, determination, and progress. Since its inception in 2014 as a partnership…
OH MG with Chloe Wigg
Myasthenia Gravis Awareness Month went to a new level this year with the Oh MG Art Exhibition held at the Logan Art Gallery in Brisbane. The artist, Chloe Wigg, who also has MG, worked for several years to stage this wonderful exhibition which highlights MG as a snowflake condition. The use of Mestinon bottles also…
MGBase launch paper has been published and is online!
MGBase Launch Paper Now Published The MGBase registry launch paper is a landmark initiative bringing together deidentified clinical data from over 1,200 MG patients across 15 countries. Built on the proven MSBase platform, this collaborative research tool enables long-term insights into treatment outcomes, disease progression, and global variations in care. Backed by Myasthenia Alliance Australia,…
How Australians living with Myasthenia Gravis are shaping the future of MG treatment decisions
The VALUE-MG research team have provided an update on an important co-designed study that is looking at what people with MG value most when it comes to treatments. Thank you to all MG patients who have contributed to this research so far. Study Update: How Australians living with Myasthenia Gravis are shaping the future of…
Success: Four new treatment options recommended for MG patients in Australia!
The Pharmaceutical Benefits Advisory Committee (PBAC) has published the outcomes from their March 2025 meeting. PBAC has recommended that all 4 new treatments for MG patients be listed on the Pharmaceutical Benefits Scheme (PBS). This is wonderful news for our patient community in Australia and it shows that our submissions and engagement with the assessment process were impactful…