- All
- About MAA News Items
- Annual Conference News Items
- Art With Heart News Items
- Get Involved News Items
- Health Professionals News Items
- Living with MG News Items
- MG Awareness Month News Items
- Patient Tool Kit
- Policy Makers News Items
- Understanding MG News Items
Another opportunity to share your experience and preferences about treatments – make a PBAC submission for Vyvgart® in subcutaneous injection form
Another opportunity to share your experience and preferences about treatments – make a PBAC submission for Vyvgart® in subcutaneous injection form The Pharmaceutical Benefits Advisory Committee (PBAC) will assess the subcutaneous injection form of Vyvgart® (efgartigimod alfa) for acetylcholine receptor autoantibody positive (AChR+) gMG patients at its meeting in November 2025. Efgartigimod alfa is a…
Congenital Myasthenic Syndrome (CMS) patients – please complete this MAA survey!
The MAA would like to hear from ALL Australians diagnosed with CMS. We need to capture your numbers (parents/guardians can respond on behalf of children). We also want to learn about your experiences here in Australia regarding accessing Ruzurgi/Amifampridine/3,4-DAP as a treatment option. The supplier of Ruzurgi is working towards achieving PBS funding for CMS…
LET’S SHOW OUR APPRECIATION TO DR CARLO ANTOZZI: Don’t miss out on this incredible expert insights event
Myasthenia Alliance Australia is delighted to remind our community of an important upcoming event. 📅 Date: Monday 15 September🕛 Time: 12:30pm – 2:00pm📍 Location: Rydges South Bank, Brisbane With thanks to the generous support of Argenx, we will be welcoming Dr Carlo Antozzi to speak on “Myasthenia Gravis and Symptom Assessment Tools to Improve Outcomes.”…
Why volunteer? Experiencing the MG Patient Advocacy Organisation (PAO) Summit is just one example!
In May this year, people who are both a patient and patient advocate or representative came together in Den Haag, in The Netherlands. We came from about 15 different countries. I had not met one of them before arriving there, and yet I felt immediately at home. Although we come from different countries with different…
[Updated Link] EXPERT INSIGHTS: Myasthenia Gravis and symptom assessment tools to improve outcomes
The Myasthenia Alliance Australia are delighted to announce an in-person event to be hosted in Brisbane on Monday September 15th from 12 midday. We thank Argenx for supporting this opportunity to hear from Dr Carlo Antozzi speaking on “Myasthenia Gravis and symptom assessment tools to improve outcomes”. This is a significant educational opportunity for patients…
You are not alone in your experiences!
The MAA captured some invaluable information about our community as a part of the webinar hosted in January 2025. The webinar heard from leading Specialists who explained the new treatments which are currently seeking PBS funding. This webinar can be viewed here. The information collected was incorporated into the MAA Submission to the PBAC. The…
- « Previous
- 1
- 2
- 3