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Connect With Others Living With Myasthenia Gravis
Living with myasthenia gravis can sometimes feel isolating, but you don’t have to face it alone. Myasthenia Alliance Australia is partnering with Rare Voices Australia to offer Virtual Kitchen Table Peer Support Sessions, providing a safe and welcoming online space to connect with others who understand. Held in small groups of just 12 participants, these sessions encourage people living with rare disease disabilities and their carers to share experiences, learn practical strategies and build supportive connections. The upcoming session explores Coping with Change and Transitions. Places are limited, so early registration is encouraged.
Your MG Journey, All in One Place: Explore the Myasthenia Alliance Australia Patient Toolkit
Living with myasthenia gravis (MG) often means navigating new information, changing symptoms and treatment decisions. Whether you’ve been recently diagnosed or have been living with MG for many years, having access to reliable, practical resources can make managing your condition a little easier. That’s exactly why the Myasthenia Alliance Australia (MAA) Patient Toolkit was created.…
Professor Anneke Van der Walt: Speaking Up When Symptoms Change
Know when and how to reach out to your healthcare team when MG symptoms change. Explore key takeaways and watch the MAA educational webinar HERE.
Registrations Now Open: Join Us at the MAA 5th National Patient Conference
Registrations are now open for the MAA 5th National Patient Conference on Saturday 31 October 2026 in Brisbane. Join the MG community for a day of expert presentations, connection and the latest updates in MG care.
MG Connect Patient Symptom Tracker App now available
Living with myasthenia gravis (MG) can be unpredictable, and symptoms often fluctuate between clinic visits. The MG Connect Symptom Tracker App, developed with input from people living with MG, helps capture day-to-day changes and have more focused conversations with your neurologist. Built around the widely used Activity of Daily Living scale (MG-ADL), the app lets…
MyClad Study – ALL Recruitment Sites are now operating and ready for enquiries.
People living with generalised myasthenia gravis (gMG) who are interested in learning more about clinical research opportunities can now enquire about the MyClad Study, with all recruitment sites and participating hospitals now open for enquiries. The MyClad Study is a clinical research study evaluating an investigational medication taken by mouth for people living with gMG.…
Help Shape a New Brain Function and Wellbeing App. Complete a Short Survey by 6 July
Share your feedback by Monday 6 July Researchers from Monash University and Alfred Health are inviting people living with neurological conditions to help shape the development of a new Brain Function and Wellbeing App. The smartphone app is being designed to help people track symptoms, thinking, memory, wellbeing and quality of life over time. It…
A new innovative therapy for Myasthenia listed on the PBS
Rystiggo (rozanolixizumab) is now listed on the Pharmaceutical Benefits Scheme (PBS) for generalised Myasthenia Gravis (gMG) patients who are AChR antibody positive.* Rystiggo is the first neonatal Fc receptor (FcRn) inhibitor available via the PBS for our patient community. This is a fantastic milestone for us because it expands our treatment options. In fact, it…
Final Opportunity: The Art With Heart Auction Closes This Sunday
VIEW THE ART WITH HEART AUCTION >> The countdown is on… After months of planning, creating, donating, sharing and raising awareness, the Art With Heart Auction is now entering its final days. At midnight on Sunday 28 June 2026, bidding will officially close. If you’ve been meaning to take a look, place a bid, or…
Art With Heart Auction | Bidding Now Open!
VIEW THE ART WITH HEART AUCTION >> What an incredible month it has been for the MG community. Across Australia, MG Awareness Month has sparked a wave of activity, connection and conversation. From partnerships with the Cowboys Rugby League Club and landmark buildings lighting up in support, to guest speakers, community walks and local events,…