Latest News

Stay up to date with the latest developments in myasthenia gravis research, advocacy, and community support. Explore news, events, and policy updates to stay informed and get involved.

Browse our categories to explore stories relevant to you, and stay connected with the MG community.

All
  • All
  • About MAA News Items
  • Annual Conference News Items
  • Art With Heart News Items
  • Get Involved News Items
  • Health Professionals News Items
  • Living with MG News Items
  • MG Awareness Month News Items
  • Patient Tool Kit
  • Policy Makers News Items
  • Understanding MG News Items
Keeping track of your life when managing Myasthenia

Association Management committee members regularly suggest that people keep a diary of their symptoms, medications, lifestyle impacts etc. in preparation for their visits to the Doctor.

Consumer Research Survey – IVIg

NPS MedicineWise is looking for people who have been prescribed immunoglobulins (antibodies) as part of their treatment to take part in a short survey online and/or an in-depth interview over the phone.

COVID-19 VACCINATION QUESTIONS?

The consensus of the Doctors is that ALL patients with Myasthenia should be vaccinated.

IMPORTANT MESSAGE FROM MAA MEDICAL ADVISORY BOARD

Anybody who has previously had or currently has a thymoma should take extra care protecting against exposure to COVID 19.

CURRENT RESEARCH TRENDS AND HOW WE CAN TAKE ADVANTAGE!

It is critical that we, as a community, embrace the on-line survey approach to learning more about MG.

RARE DISEASE DAY – 29 FEBRUARY, 2020

Susan White, MAA President, is delighted to be attending the Parliamentary Event to be held in Canberra, on Wednesday, February 26th in celebration of Rare Diseases Day.

National Strategic Action Plan for Rare Diseases

Susan White, MAA President, is delighted to be attending the Parliamentary Event to be held in Canberra, on Wednesday, February 26th in celebration of Rare Diseases Day.

Inform your Federal Member Please!

The letter requesting support in applying for Rituximab treatment in Myasthenia to be included on the PBS has gone to Minister Hunt.

MG Versus Mgen

An unfortunate media release occurred in July this year.