Industry Engagement Opportunity for AChR+ MG Patients – The MAA appreciates your interest in this market research if you feel you can help.

Lived Experience Patient Research Request

Are you interested in sharing your journey and experience with Myasthenia Gravis (MG) to help others better understand the current lived experience and impact on daily life?

Alexion Astra Zeneca Rare Disease is seeking expressions of interest from a number of patients diagnosed with AChR+ MG to participate in an online research activity that explores the patient journey and the impact of the condition on daily life.  This information will be helpful to guide the development of person-centred education materials for healthcare professionals and the MG patient and caregiver community.

De-identified insights will also be shared back to participants and the MAA, and help build on the rich body of research that the MAA community is developing to increase awareness of MG.

What does it involve?

You will be asked to register and consent to join an individual online portal where you will be given some questions and tasks which can be completed in about 75 minutes over a 2 week period.  All participants will be offered compensation for their time to complete the exercise.

If you would like to register your interest, please fill out the registration form at

or copy this link into your browser.
If you have any questions about the research and topics covered, please contact Sam at or Libby Noble on 0407 110 204;

Expressions of interest will close on Friday 17 November.

This activity is sponsored by Alexion Pharmaceuticals Ltd, 66 Talavera Road, Macquarie Park, NSW 2113.

The Myasthenia Alliance Australia (MAA) Board