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Recommendations on the use of a 3rd Primary Dose of COVID-19 Vaccinations for People Severely Immunocompromised
October 12, 2021

Recommendations on the use of a 3rd Primary Dose of COVID-19 Vaccinations for People Severely Immunocompromised

MG PATIENT REPORTED OUTCOME SURVEY
October 8, 2021

The “Myasthenia Gravis Patient Reported Outcome Survey” Research Project is now ready for patient input!

MESTINON SHORTAGE
July 14, 2021

The supply of the 60 mg dose of Mestinon is expected to be disrupted until late August.

WORK WITH A GREAT TEAM
July 1, 2021

Work with a Great Team!

June is Myasthenia Gravis Awareness Month!
June 1, 2021

June is Myasthenia Gravis Awareness Month.

UPDATE to Discussion Paper Regarding COVID VACCINATION
May 17, 2021

An update to the COVID-19 Discussion Paper

Keeping track of your life when managing Myasthenia
April 29, 2021

Association Management committee members regularly suggest that people keep a diary of their symptoms, medications, lifestyle impacts etc. in preparation for their visits to the Doctor.

Consumer Research Survey – IVIg
April 17, 2021

NPS MedicineWise is looking for people who have been prescribed immunoglobulins (antibodies) as part of their treatment to take part in a short survey online and/or an in-depth interview over the phone.

Discussion Paper Regarding COVID VACCINATION
March 18, 2021

The consensus of the Doctors is that ALL patients with Myasthenia should be vaccinated.

ADVOCACY TOOLKIT
February 28, 2021

With the support of Terumo BCT, a tailored public affairs toolkit has been developed entitled “How can patient organisations ensure their voices are heard in public policy?” The aim is to help Australian patients in their advocacy efforts.