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Stay up to date with the latest developments in myasthenia gravis research, advocacy, and community support. Explore news, events, and policy updates to stay informed and get involved.

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NDIS SECOND STAGE

In the latest partner event with Rare Voices Australia, the MAA has participated in a forum to discuss how the NDIS is functioning for people with rare disease.

MAA SEEKING VICTORIANS RECEIVING THERAPEUTIC PLASMA EXCHANGE

The Myasthenia Alliance Board are seeking out Victorians who access Therapeutic Plasma Exchange as a regular or intermittent treatment option to help them better understand patient experiences.

MAA 2019-2020 ANNUAL REPORT

The Myasthenia Alliance Australian 2019-2020 Annual Report is available.

COVID-19 VACCINATION QUESTIONS?

The consensus of the Doctors is that ALL patients with Myasthenia should be vaccinated.

UPDATE ON RITUXIMAB

A Parliamentary Inquiry has commenced into new drugs and novel medical technologies.

IMPORTANT MESSAGE FROM MAA MEDICAL ADVISORY BOARD

Anybody who has previously had or currently has a thymoma should take extra care protecting against exposure to COVID 19.

ARE YOU GETTING THE BEST SUPPORT POSSIBLE FROM THE AVAILABLE ALLIED HEALTH SERVICES?

This research will help us develop educational and advocacy materials for people with Myasthenia Gravis to receive allied health services.

CURRENT RESEARCH TRENDS AND HOW WE CAN TAKE ADVANTAGE!

It is critical that we, as a community, embrace the on-line survey approach to learning more about MG.

IMPORTANT MAA SURVEY

The MAA Board urges people to complete a very short survey. It will help ensure more equitable access to treatments. Thank you in anticipation.

COVID-19 SUGGESTED PRECAUTIONS

As people with a chronic illness, particularly inclusive of those who are immune suppressed, the Myasthenia Gravis community should be very familiar with the precautions needed to stay safe from infections.