Last updated: 14th of August, 2025
1. Introduction
Myasthenia Alliance Australia (MAA) respects your privacy and is committed to protecting your personal information.
This Privacy Policy explains how we collect, use, store, and disclose your personal information when you interact with our website, programs, and services.
We comply with the Privacy Act 1988 (Cth) and the Australian Privacy Principles (APPs).
2. Information We Collect
We may collect the following types of personal information:
-
Name, email address, phone number, and mailing address
-
Organisation or affiliation details
-
Information you provide via forms, surveys, donations, or event registrations
-
Technical information such as IP address, browser type, and site usage data
We do not collect sensitive health information unless you provide it voluntarily (e.g., sharing your MG story) and consent to its use.
3. How We Collect Information
We collect personal information when you:
-
Contact us via email, phone, or our website
-
Subscribe to newsletters or mailing lists
-
Register for events or participate in surveys
-
Make donations through our website or partner platforms
-
Use our website (via cookies and analytics tools)
4. How We Use Your Information
We use your information to:
-
Communicate with you and respond to enquiries
-
Provide information, resources, and services
-
Process donations and issue receipts
-
Administer events, programs, and surveys
-
Improve our website and services
-
Comply with legal and regulatory obligations
We will not sell or rent your personal information.
5. Disclosure of Your Information
We may share your personal information with:
-
Trusted service providers who help us operate our website, events, or communications
-
Partner organisations where you have consented
-
Legal authorities if required by law
These parties are required to keep your information confidential.
6. Storage and Security
We store personal information in secure systems and take reasonable steps to protect it from misuse, interference, loss, unauthorised access, modification, or disclosure.
7. Access and Correction
You may request access to the personal information we hold about you and request corrections if it is inaccurate, incomplete, or out of date.
Contact us at: support@myastheniaalliance.org.au
8. Cookies and Analytics
Our website uses cookies and similar technologies to improve functionality and analyse traffic.
You can disable cookies in your browser, but some features may not function correctly.
9. Third-Party Links
Our website may contain links to other websites. We are not responsible for the privacy practices of those websites.
10. Changes to This Policy
We may update this Privacy Policy from time to time. Any changes will be posted on our website with the updated date.
11. Contact Us
If you have questions or concerns about this Privacy Policy or our privacy practices, please contact:
Myasthenia Alliance Australia
Email: support@myastheniaalliance.org.au
Website: https://myastheniaalliance.org.au/