- All
- About MAA News Items
- Annual Conference News Items
- Art With Heart News Items
- Get Involved News Items
- Health Professionals News Items
- Living with MG News Items
- MG Awareness Month News Items
- Patient Tool Kit
- Policy Makers News Items
- Understanding MG News Items
Research Report
The Myasthenia Alliance Australia (MAA) supports and promotes research that is specific to the experience of Myasthenia Gravis (MG) patients in Australia. But we would not be able to do this without the essential and valuable contribution of Australians with MG. One current project is VALUE-Ig, which aims to generate evidence to inform the optimal…
Partnering With Canada
To Australians with Myasthenia, the following is a message from Dr Carolina Barnette-Tapia MD, PhD of Canada. The MAA thank Australians for their interest in supporting this project. Responses will be welcomed until early September 2024. Information about the outcomes resulting from this research has been requested. Disclosure information is provided after logging in. “We…
Gene Therapy for Congenital Myasthenia Syndrome – Webinar Invitation
The MAA first engaged with Amplo Biotechnologies at the 2019 Brisbane Conference. We are delighted to report that Patricio Sepulveda, CEO, is offering to share updated information on “what they are doing and where they are at”. Patricio reports that 35 different genes have now been identified to capture more people with Congenital Myasthenia Syndrome.…
Thank you to the Myasthenia Community of Australia
The MAA which to express a very hearty thank you to every member of the Myasthenia Community, and to the family and friends who support them, for so strongly rallying behind the recent Art With Heart project. The second Art With Heart Awareness Campaign has now been completed and the MAA Board are delighted with…
ART WITH HEART AUCTION
RESERVE PRICE REMOVED! Last Days CLICKE HERE TO BID NOW Artistic Flair, Unforgettable Masterpieces by Hermen Pekel and Chris Searl. Both artists have very generously removed their reserve price in support of Myasthenia patients. Your chance to own a beautiful original artwork by these renowned Australian artists. Don’t be slow! Bidding closes 29th June
Make a submission to PBAC about a new complement inhibitor treatment, Zilucoplan
Make a submission to PBAC about a new complement inhibitor treatment, Zilucoplan
UPDATED – Participate in a focus group to help design research for MG patients
Participate in a focus group to help design research for MG patients
