08
Oct
MG PATIENT REPORTED OUTCOME SURVEY
Category: Research
The “Myasthenia Gravis Patient Reported Outcome Survey” Research Project is now ready for patient input!
14
Jul
MESTINON SHORTAGE
Category: Other News
The supply of the 60 mg dose of Mestinon is expected to be disrupted until late August.
01
Jun
June is Myasthenia Gravis Awareness Month!
Category: Uncategorized
June is Myasthenia Gravis Awareness Month.
17
May
UPDATE to Discussion Paper Regarding COVID VACCINATION
Category: Uncategorized
An update to the COVID-19 Discussion Paper
29
Apr
Keeping track of your life when managing Myasthenia
Category: Other News
Association Management committee members regularly suggest that people keep a diary of their symptoms, medications, lifestyle impacts etc. in preparation for their visits to the...
17
Apr
Consumer Research Survey – IVIg
Category: Research
NPS MedicineWise is looking for people who have been prescribed immunoglobulins (antibodies) as part of their treatment to take part in a short survey online and/or an in-depth ...
18
Mar
Discussion Paper Regarding COVID VACCINATION
Category: Uncategorized
The consensus of the Doctors is that ALL patients with Myasthenia should be vaccinated.
28
Feb
ADVOCACY TOOLKIT
Category: Uncategorized
With the support of Terumo BCT, a tailored public affairs toolkit has been developed entitled “How can patient organisations ensure their voices are heard in public policy?” The...
28
Feb
NDIS SECOND STAGE
Category: Uncategorized
In the latest partner event with Rare Voices Australia, the MAA has participated in a forum to discuss how the NDIS is functioning for people with rare disease.