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Discussion Paper Regarding COVID VACCINATION
The consensus of the Doctors is that ALL patients with Myasthenia should be vaccinated.
ADVOCACY TOOLKIT
With the support of Terumo BCT, a tailored public affairs toolkit has been developed entitled “How can patient organisations ensure their voices are heard in public policy?” The aim is to help Australian patients in their advocacy efforts.
NDIS SECOND STAGE
In the latest partner event with Rare Voices Australia, the MAA has participated in a forum to discuss how the NDIS is functioning for people with rare disease.
MAA SEEKING VICTORIANS RECEIVING THERAPEUTIC PLASMA EXCHANGE
The Myasthenia Alliance Board are seeking out Victorians who access Therapeutic Plasma Exchange as a regular or intermittent treatment option to help them better understand patient experiences.
COVID-19 VACCINATION QUESTIONS?
The consensus of the Doctors is that ALL patients with Myasthenia should be vaccinated.
UPDATE ON RITUXIMAB
A Parliamentary Inquiry has commenced into new drugs and novel medical technologies.
IMPORTANT MESSAGE FROM MAA MEDICAL ADVISORY BOARD
Anybody who has previously had or currently has a thymoma should take extra care protecting against exposure to COVID 19.
ARE YOU GETTING THE BEST SUPPORT POSSIBLE FROM THE AVAILABLE ALLIED HEALTH SERVICES?
This research will help us develop educational and advocacy materials for people with Myasthenia Gravis to receive allied health services.