Myasthenia Alliance Australia is pleased to share the recording of our recent webinar with Fiona Lawton, Disability Advocacy Manager at Rare Voices Australia (RVA).
This webinar explores disability in the context of living with a rare disease and introduces the Rare Disease Disability Toolkit, developed by Rare Voices Australia to help people living with rare disease, their families and carers better understand disability and navigate available supports.
Watch the Webinar
In this informative session, Fiona discusses:
- what it means to have a disability
- how living with a rare disease may meet the definition of disability
- finding support when living with disability
- disability advocacy and self-advocacy
- navigating the NDIS and supports available beyond the NDIS
- practical resources available through the Rare Disease Disability Toolkit
For people living with Myasthenia Gravis, understanding what support may be available can make it easier to navigate services, advocate for your needs and make informed decisions about your circumstances.
Rare Disease Disability Toolkit
The Rare Disease Disability Toolkit provides practical information and resources for Australians living with rare disease and disability, as well as their families and carers.
Explore the Rare Disease Disability Toolkit:
https://rarevoices.org.au/rare-disease-disability-project/rare-disease-disability-toolkit/
Myasthenia Alliance Australia sincerely thanks Fiona Lawton and Rare Voices Australia for partnering with us to deliver this valuable webinar and for sharing these important resources with the Myasthenia Gravis community.