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A message to the Australian MG community and in particular to patients in NSW from Associate Professor Stephen Reddel.
I am writing to let you know that I, Steve Reddel, is taking part as a Principal Investigator in a study for patients with generalized Myasthenia Gravis (gMG). The study is sponsored by Novartis. The study is a multicentre, double-blind, placebo-controlled phase III study of an oral medication in generalised myasthenia gravis patients with ACHR+…
Save the Date! MAA 5th National Patient Conference
The MAA team are preparing to host a 5th National Patient Conference. This will be a very special event hosted at Rydges South Bank in South Brisbane. Hosting at a function centre allows the MAA to make attending much more achievable for many in our community. Auditorium seating is replaced with round tables, lots of…
Reminder: Join MAA’s Upcoming Webinar on Recognising MG Symptom Changes
Living with myasthenia gravis often means symptoms can change unexpectedly, making it difficult to know when to seek support or start a conversation with your healthcare team. Myasthenia Alliance Australia (MAA) invites you to join our upcoming webinar: Speaking Up When Symptoms Change: Knowing When and How to Reach Out to Your Doctor Presented by…
The Response to Art With Heart Has Been Incredible… But We’re Not Done Yet
The generosity already shown through the Art With Heart campaign has been truly inspiring. With artwork and item donations officially closing on 5 June 2026, now is the final opportunity to contribute to a campaign helping raise awareness and support for people living with myasthenia gravis. Artists, supporters, businesses, and members of the community from…
Speaking Up When Symptoms Change | Knowing When and How to Reach Out to Your Doctor
Registration Link: https://zoom.us/webinar/register/WN_rTzKa6zoTyGttHznwYyNVA
Have your say on the framework for how we engage in HTA
You are invited to take a look at the draft Framework for Consumer Engagement in Heath Technology Assessment (HTA)and share your feedback directly with the government. Over the past couple of years, you – the Australian Myasthenia Gravis patient community – have contributed to the HTA process for new and innovative treatments being made available…
Art With Heart: Turning Awareness into Action for Myasthenia Gravis
Most people have never heard of myasthenia gravis. And for those living with it, that lack of awareness can make everyday life harder than it needs to be. It can mean delays in diagnosis.Limited access to the right care.And a constant need to explain a condition that isn’t always visible to others. For many, the…
Share your experience of neurological care and research in Australia
As an active and focused member of Neurological Alliance Australia (NAA), the MAA is supporting the NAA’s first national survey examining gaps in neurological care, support, research and identifying innovation across Australia. The survey seeks insights from people living with neurological and neuromuscular conditions, carers, clinicians, researchers, service providers, pharma industry and policymakers. Findings will…
Webinar: Integrating Physiotherapy into Your Care Team
Explore key insights from our recent webinar on physiotherapy and myasthenia gravis, including how MG-informed physiotherapy can support movement, build confidence and help people better understand their body’s signals. Watch the webinar and discover practical takeaways for integrating physiotherapy into your care team.