28
Oct
Prof. Steve Vucic talks about the Patient Reported Survey Project.
Category: MG Treatments & Therapies
An interesting and informative podcast has been produced to discuss the latest myasthenia research project.
20
Oct
RITUXIMAB PBS LISTED!
Category: MG Treatments & Therapies
Rituximab has now been listed on the Pharmaceutical Benefits Scheme.
12
Oct
Recommendations on the use of a 3rd Primary Dose of COVID-19 Vaccinations for People Severely Immunocompromised
Category: MG Treatments & Therapies
Recommendations on the use of a 3rd Primary Dose of COVID-19 Vaccinations for People Severely Immunocompromised
08
Oct
MG PATIENT REPORTED OUTCOME SURVEY
Category: Research
The “Myasthenia Gravis Patient Reported Outcome Survey” Research Project is now ready for patient input!
14
Jul
MESTINON SHORTAGE
Category: Other News
The supply of the 60 mg dose of Mestinon is expected to be disrupted until late August.
01
Jun
June is Myasthenia Gravis Awareness Month!
Category: Uncategorized
June is Myasthenia Gravis Awareness Month.
17
May
UPDATE to Discussion Paper Regarding COVID VACCINATION
Category: Uncategorized
An update to the COVID-19 Discussion Paper
29
Apr
Keeping track of your life when managing Myasthenia
Category: Other News
Association Management committee members regularly suggest that people keep a diary of their symptoms, medications, lifestyle impacts etc. in preparation for their visits to the...
17
Apr
Consumer Research Survey – IVIg
Category: Research
NPS MedicineWise is looking for people who have been prescribed immunoglobulins (antibodies) as part of their treatment to take part in a short survey online and/or an in-depth ...