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RARE DISEASE DAY – 29 FEBRUARY, 2020
Susan White, MAA President, is delighted to be attending the Parliamentary Event to be held in Canberra, on Wednesday, February 26th in celebration of Rare Diseases Day.
National Strategic Action Plan for Rare Diseases
Susan White, MAA President, is delighted to be attending the Parliamentary Event to be held in Canberra, on Wednesday, February 26th in celebration of Rare Diseases Day.
MAA Annual Report
New information about medications that can worsen symptoms in patients suffering from myasthenia gravis (MG) has been published on the MAA website. This list is designed as an aid to assist guiding therapeutic decisions for MG patients and their doctors.
Friendly Reminder to All Travellers
New information about medications that can worsen symptoms in patients suffering from myasthenia gravis (MG) has been published on the MAA website. This list is designed as an aid to assist guiding therapeutic decisions for MG patients and their doctors.
Patient Survey Still Ongoing!
New information about medications that can worsen symptoms in patients suffering from myasthenia gravis (MG) has been published on the MAA website. This list is designed as an aid to assist guiding therapeutic decisions for MG patients and their doctors.
Updated information on drugs to be used with caution with MG
New information about medications that can worsen symptoms in patients suffering from myasthenia gravis (MG) has been published on the MAA website. This list is designed as an aid to assist guiding therapeutic decisions for MG patients and their doctors.
2019 Conference Success – Thank You!
After months of planning the 2019 MAA Myasthenia Gravis Conference was huge success!
2019 Conference Summary
Conversation from these Doctors included helping us to understand how Rituximab works, why there is a tightening guideline to IVIg prescriptions and why patients should not be fearful, what is Therapeutic Plasma Exchange, and can it be a possible option for some patients.
How Active Are You? Seeking People With MG For Study
Researchers at the School of Health and Rehabilitation Sciences (SHRS) at the University of Queensland are seeking individuals with myasthenia gravis to participate in a study investigating levels of physical activity and sitting time and their relationship with fatigue, quality of life and functional mobility.