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Stay up to date with the latest developments in myasthenia gravis research, advocacy, and community support. Explore news, events, and policy updates to stay informed and get involved.

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Patient Reported Outcome Survey Progress
November 23, 2021

Take part in Patient Reported Outcome Survey.

Prof. Steve Vucic talks about the Patient Reported Survey Project.
October 28, 2021

An interesting and informative podcast has been produced to discuss the latest myasthenia research project.

RITUXIMAB PBS LISTED!
October 20, 2021

Rituximab has now been listed on the Pharmaceutical Benefits Scheme.

Recommendations on the use of a 3rd Primary Dose of COVID-19 Vaccinations for People Severely Immunocompromised
October 12, 2021

Recommendations on the use of a 3rd Primary Dose of COVID-19 Vaccinations for People Severely Immunocompromised

MG PATIENT REPORTED OUTCOME SURVEY
October 8, 2021

The “Myasthenia Gravis Patient Reported Outcome Survey” Research Project is now ready for patient input!

MESTINON SHORTAGE
July 14, 2021

The supply of the 60 mg dose of Mestinon is expected to be disrupted until late August.

WORK WITH A GREAT TEAM
July 1, 2021

Work with a Great Team!

UPDATE to Discussion Paper Regarding COVID VACCINATION
May 17, 2021

An update to the COVID-19 Discussion Paper

Keeping track of your life when managing Myasthenia
April 29, 2021

Association Management committee members regularly suggest that people keep a diary of their symptoms, medications, lifestyle impacts etc. in preparation for their visits to the Doctor.

Consumer Research Survey – IVIg
April 17, 2021

NPS MedicineWise is looking for people who have been prescribed immunoglobulins (antibodies) as part of their treatment to take part in a short survey online and/or an in-depth interview over the phone.