Researchers at the School of Health and Rehabilitation Sciences (SHRS) at the University of Queensland are seeking individuals with myasthenia gravis to participate in a study investigating levels of physical activity and sitting time and their relationship with fatigue, quality of life and functional mobility.
There is a substantial amount of evidence indicating that physical activity and sitting time have a significant impact on a broad range of health and wellbeing outcomes, however there is currently limited research in this area in people with MG.
This study will contribute to our understanding of activity in individuals with MG and what factors might contribute to and impact on physical activity participation.
Aim: To investigate levels of physical activity and sitting time in individuals with myasthenia gravis and explore its relationship with fatigue, quality of life and functional mobility.
Type of volunteers needed:
- Individuals with myasthenia gravis aged 18 – 70 years
- Individuals able to mobilise independently with or without a walking aid (excluding wheelchairs)
- Stable symptoms for the last four weeks prior to commencing the study (can be currently receiving treatment)
What is involved?
- Completion of an online questionnaire
- 1-hour assessment of walking and mobility (at the UQ campus in St Lucia, or at a suitable clinical location convenient to you)
- Wearing two small activity monitors for 7 days during normal everyday life
- An interview exploring your views on your own physical activity and any potential barriers and facilitators to participation
HOW ACTIVE ARE YOU?
We are seeking people with myasthenia gravis (MG) to help us better understand the impact of MG on levels of physical activity and sitting time.
Participation involves completing an online survey and wearing two small, lightweight activity monitors for seven consecutive days as you go about your normal day to day life, and then answering some questions about your activity levels.
For more information and to access the survey, scan the QR code
with your device or go to:
www.surveymonkey.com/r/MG2019SURVEY
For more information on this study, please contact:
Tahlia Alsop (Honours student) t.alsop@uq.edu.au
Dr Sjaan Gomersall (Principal advisor) s.gomersall1@uq.edu.au or 3365 4528