Susan White, MAA President, is delighted to be attending the Parliamentary Event to be held in Canberra, on Wednesday, February 26th in celebration of Rare Diseases Day. Dr Mike Freelander MP, Mr Trent Zimmerman MP and Rare Voices Australia will host the day. Health Minister, Greg Hunt, is to launch the National Strategic Action Plan for Rare Diseases. It will be a significant day.
Susan will be available on Tuesday afternoon (February 25th) from 2 pm to speak with sufferers, family and all interested persons about the work undertaken by the MAA in support of people with Myasthenia. This will be a very casual gathering at the Bittersweet Café, 27 Eyre St, Kingston 2604. If intending to attend, or if there are questions, please call 1800 802 568 for additional information. Susan enjoys meeting people associated with this condition as this allows the MAA to identify the issues important to our community.