18
Mar
Discussion Paper Regarding COVID VACCINATION
Category: Uncategorized
The consensus of the Doctors is that ALL patients with Myasthenia should be vaccinated.
28
Feb
ADVOCACY TOOLKIT
Category: Uncategorized
With the support of Terumo BCT, a tailored public affairs toolkit has been developed entitled “How can patient organisations ensure their voices are heard in public policy?” The...
28
Feb
NDIS SECOND STAGE
Category: Uncategorized
In the latest partner event with Rare Voices Australia, the MAA has participated in a forum to discuss how the NDIS is functioning for people with rare disease.
29
Jan
MAA SEEKING VICTORIANS RECEIVING THERAPEUTIC PLASMA EXCHANGE
Category: Uncategorized
The Myasthenia Alliance Board are seeking out Victorians who access Therapeutic Plasma Exchange as a regular or intermittent treatment option to help them better understand pati...
29
Jan
MAA 2019-2020 ANNUAL REPORT
Category: Uncategorized
The Myasthenia Alliance Australian 2019-2020 Annual Report is available.
09
Jan
COVID-19 VACCINATION QUESTIONS?
Category: Uncategorized
The consensus of the Doctors is that ALL patients with Myasthenia should be vaccinated.
26
Sep
UPDATE ON RITUXIMAB
Category: MG Treatments & Therapies
A Parliamentary Inquiry has commenced into new drugs and novel medical technologies.
26
Sep
IMPORTANT MESSAGE FROM MAA MEDICAL ADVISORY BOARD
Category: Other News
Anybody who has previously had or currently has a thymoma should take extra care protecting against exposure to COVID 19.
11
Jul
ARE YOU GETTING THE BEST SUPPORT POSSIBLE FROM THE AVAILABLE ALLIED HEALTH SERVICES?
Category: Other News
This research will help us develop educational and advocacy materials for people with Myasthenia Gravis to receive allied health services.
11
Jul
CURRENT RESEARCH TRENDS AND HOW WE CAN TAKE ADVANTAGE!
Category: Other News
It is critical that we, as a community, embrace the on-line survey approach to learning more about MG.