17
Apr
Consumer Research Survey – IVIg
Category: Research
NPS MedicineWise is looking for people who have been prescribed immunoglobulins (antibodies) as part of their treatment to take part in a short survey online and/or an in-depth ...
18
Mar
Discussion Paper Regarding COVID VACCINATION
Category: Uncategorized
The consensus of the Doctors is that ALL patients with Myasthenia should be vaccinated.
28
Feb
ADVOCACY TOOLKIT
Category: Uncategorized
With the support of Terumo BCT, a tailored public affairs toolkit has been developed entitled “How can patient organisations ensure their voices are heard in public policy?” The...
28
Feb
NDIS SECOND STAGE
Category: Uncategorized
In the latest partner event with Rare Voices Australia, the MAA has participated in a forum to discuss how the NDIS is functioning for people with rare disease.
29
Jan
MAA SEEKING VICTORIANS RECEIVING THERAPEUTIC PLASMA EXCHANGE
Category: Uncategorized
The Myasthenia Alliance Board are seeking out Victorians who access Therapeutic Plasma Exchange as a regular or intermittent treatment option to help them better understand pati...
29
Jan
MAA 2019-2020 ANNUAL REPORT
Category: Uncategorized
The Myasthenia Alliance Australian 2019-2020 Annual Report is available.
09
Jan
COVID-19 VACCINATION QUESTIONS?
Category: Uncategorized
The consensus of the Doctors is that ALL patients with Myasthenia should be vaccinated.
26
Sep
UPDATE ON RITUXIMAB
Category: MG Treatments & Therapies
A Parliamentary Inquiry has commenced into new drugs and novel medical technologies.
26
Sep
IMPORTANT MESSAGE FROM MAA MEDICAL ADVISORY BOARD
Category: Other News
Anybody who has previously had or currently has a thymoma should take extra care protecting against exposure to COVID 19.
11
Jul
ARE YOU GETTING THE BEST SUPPORT POSSIBLE FROM THE AVAILABLE ALLIED HEALTH SERVICES?
Category: Other News
This research will help us develop educational and advocacy materials for people with Myasthenia Gravis to receive allied health services.