“Thank you - Patient Voices Matter”

Dear MAA members,

We want to extend our sincerest gratitude to all of you who took part in the survey looking at the various impacts of the COVID-19 pandemic on your lives. We received 229 responses which is an excellent number. Our preliminary analysis has shown that, on average, the pandemic had a mild impact on your myasthenia control and treatment but had a more substantial impact on other aspects of your life.

The results of the survey will be published in the coming months in an international peer-reviewed journal, where we will explore the impact of the pandemic on your myasthenia control, treatment choices, other medical conditions, as well as financial and emotional wellbeing. The results of this survey are of great importance to the general and medical community, as those who are immunosuppressed have been at the forefront of the pandemic. We anticipate the results of the survey will guide medical practitioners to focus on areas that may have previously received less attention and provides important lessons in the event of future global health events.

Thank you and best wishes,

Dr. Pakeeran Siriratnam, Dr. Katherine Buzzard, A/Prof. Stephen Reddel, Dr. Ben Chen, Dr. WenWen Zhang, & Dr. Laura McArthur